This is Emma. She was born in 2007, with a rare genetic disorder called Prader-Willi syndrome. Prader-Willi is a complex genetic condition that affects many parts of the body. For many years, Emma was doing well and her parents and family had managed the syndrome with few issues.
However, in early 2020, her parents, who live in Danville, IL, noticed some changes, and Emma was rushed to the emergency room. After an examination, doctors decided that Emma needed to be transferred to OSF Children’s Hospital of Illinois in Peoria, IL, which is about 2 hours from their home.
Continue reading about Emma and her Family...
