Thirteen years ago, a little boy was born three months early. He came into this world weighing only two pounds, with two holes in his heart and two blood clots on each side of his brain. His name was Rawley Sisson, and his mom, Jana Rose, knew that they would have a long health journey ahead of them. Today, Rawley continues to face medical issues, but more importantly, he is a vibrant teenager who loves Baby Yoda and playing video games. Due to his medical issues, which include heart, kidney, and lung disease, Elhers Danlos syndrome, autism, separation anxiety, Tourette syndrome, and PTSD, Rawley and Jana Rose are often in Peoria, seeing one of his 18 specialists at OSF Children’s Hospital of Illinois. For many …
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